Trip to Disney is a dream come true for teen diagnosed with rare disease
The last three years have been incredibly difficult for the Magee family, but now they have something to look forward to.
Thanks to the Make-A-Wish Foundation, Tatyana Spann and her family are headed to Disney World.
Three years ago, when Spann was 13 years old, she got sick. At first, they thought it was a stomach bug — but it kept getting worse. Spann went to several doctors who couldn’t figure out what was wrong. Then, she landed in the ICU and her blood work was sent to 25 labs across the world. That’s when doctors diagnosed her with neuromyelitis optica, a disease that affects the central nervous system and spinal cord.
The disease is incredibly rare, and doctors gave Spann just five years to live. But since then, she and her mother have become advocates for the disease, and treatment has come a long way.
“So much has happened throughout the years. We went from having two drugs to now we have four, so the more awareness that we spread with NMO is a blessing. It’s opened up so many doors for so many people across the world because there are only 15,000 of us,” said Tabatha Spann, Tatyana’s mother. “They reached out to me from the foundation to be an ambassador. We only had 12 starting out, and now we have 75, and that’s like a major thing.”
Tatyana is now taking a drug typically used to treat cancer, and she hasn’t relapsed since. Her mother said Tatyana’s energy is picking back up, and she’s excited to take a real vacation.